---
product_id: 6493250
title: "The Scleroderma Book: A Guide for Patients and Families"
brand: "maureen d. mayes m.d."
price: "12176 som"
currency: KGS
in_stock: true
reviews_count: 13
url: https://www.desertcart.kg/products/6493250-the-scleroderma-book-a-guide-for-patients-and-families
store_origin: KG
region: Kyrgyzstan
---

# The Scleroderma Book: A Guide for Patients and Families

**Brand:** maureen d. mayes m.d.
**Price:** 12176 som
**Availability:** ✅ In Stock

## Quick Answers

- **What is this?** The Scleroderma Book: A Guide for Patients and Families by maureen d. mayes m.d.
- **How much does it cost?** 12176 som with free shipping
- **Is it available?** Yes, in stock and ready to ship
- **Where can I buy it?** [www.desertcart.kg](https://www.desertcart.kg/products/6493250-the-scleroderma-book-a-guide-for-patients-and-families)

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## Description

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## Images

![The Scleroderma Book: A Guide for Patients and Families - Image 1](https://m.media-amazon.com/images/I/51Ikqb9NwjL.jpg)

## Customer Reviews

### ⭐⭐⭐⭐ 







  
  
    Good basic information
  

*by S***Q on Reviewed in the United States 🇺🇸 on February 15, 2023*

Good basic information that can help family and friends understand what is happening.  My only problem it was written in 2009.  Although, in listening to some of the doctors currently it sounds like they don't know much more about the disease than they did when the book was written.  The author has a Scleroderma clinic in Houston where my daughter saw a specialist.Found it used but it was in perfect shape.  I would recommend it. It's a good place to start.

### ⭐⭐⭐⭐⭐ 







  
  
    I'm trying to stay as positive as I can about scleroderma
  

*by K***S on Reviewed in the United States 🇺🇸 on November 8, 2017*

This is a great first book for anyone with scleroderma. It provided me with good information of things I didn't know yet from searching the internet. I was diagnosed with scleroderma in June 2017, and I decided then I would do everything I could to battle it. It definitely is not a party. I also decided though, that right from the beginning, I would approach this with the most positive outlook that I could. Starting right out from the gate,  I thought it might be difficult for me to do, considering I've lived with depression for much of my life. Instead, it has been possibly one of the best things that happened to me. I know, I know... that sounds crazy, but I've researched as much as I can about scleroderma and have changed my life for the better. I have omitted soda and started drinking only filtered water, from glass bottles only (plastic can leech chemicals into the water). I used to eat alot of processed and fast food, because it was easy... and of course, tasted pretty darn good lol! Now, I only eat whole foods, without sugar and gluten free as much as possible. I make my own yogurt, sauerkraut, sour cream, cream cheese and kombucha (they all give your GI tract good bacteria and different probiotics. Experts say that your gut contributes so much to your immune health and inflammation. If it's in disrepair [ie: leaky gut], it's very detrimental to your health). Also, researching and then adding various supplements is contributing to my better health. Overall, I've felt better than I ever had in my life, and this sounds contradictory... although my body is normally wracked with pain much of the day (some days are fair, some are pretty crappy... it's basically a way of life now, and I'm handling it), my sense of well being has improved.Now, I'm not saying that there are days when I'm really, really mad. Sometimes I just think that it's just not fair that this is happening. But that's ok. You're definitely allowed to have these days...it can actually give you some fuel to add to your fire to survive. It usually only lasts a day for me, then I'm back on track, being as positive as I can.I'd recommend this book, as any extra information you can learn about your condition will give you ammunition against it. Another thing I'd recommend to anyone with scleroderma... Try to find the best doctor you can so you'll have the best support throughout your journey. Unfortunately, I first went to the doctor who my PCP referred me to. She prescribed a medication containing an antibiotic, which completely obliterated the good bacteria in my gut. I honestly do not know what she was thinking. It actually gave me Candida, and landed me in the hospital. This is why I adopted the diet I spoke of earlier. I'm still fighting it.... and I've almost beat it.You can look at having scleroderma any way you like, but it certainly makes it easier if you keep your attitude positive as much as possible. There are also other books on Amazon about scleroderma. I recommend "Holding on for dear life" by Liz Devivo. It isn't informational, but it's about Liz, "giving practical and beautiful insights on coping and surviving a catastrophic illness."If you've got scleroderma, good luck with your journey. There is the International Scleroderma Network, ISN, which is the supportive organization for persons with the condition. It is also a good resource for people with scleroderma.

### ⭐⭐⭐ 







  
  
    Somewhat Useful, But Outdated Info
  

*by L***N on Reviewed in the United States 🇺🇸 on May 17, 2022*

Because this book is one of the few "out there" on this subject, I went ahead and bought it despite its publication dates: originally 1999, then 2005.  The book overall is pretty well- written and subjects are organized into understandable categories.  At 211 pages, with big font, the book is a little on the short-side  It does, however, contain what appears to be useful info, assuming that is, that the info still holds true 16-22 years later.  For example, in discussing acid reflex, it makes a clear distinction between "normal" reflux, and reflux associated with scleroderma:  the former is typically brought on by certain foods, while the latter is much more frequent and can happen with any type of food.  In summary, book does provide a useful intro to the disease, but as a current reference, its value is limited.

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*Product available on Desertcart Kyrgyzstan*
*Store origin: KG*
*Last updated: 2026-02-28*